is a member of Artistle
She shared the moving story of her nephew with AlexanderPaupoff
and me, and we instantly knew what we had to do.
:Breylon has Myoneurogastointestinal Disorder and Encephalopathy(MNGIE) which is a type of mitochondrial disease. Basically, all this medical mumbo jumbo means that his body doesn't produce enough energy to keep his body functioning. This lead to many other serious issues with Breylon's health including but not limited to seizures, brain deterioration, and intestinal failure. He is only 4 years old, and he has spent a large portion of his life in the hospital, most recently Dec. 2 through Dec. 19. This will be his last hospitalization since his parents made the difficult decision to move him to complete hospice care.
Mitochondrial disease has no cure, and it's not as rare as you might think.
To understand mitochondrial disease: www.umdf.org
and to learn about Breylon's fight: Team Breylon,
and The Breylon Senn Research Fund in partnership with The United Mitochondrial Disease Foundation.What's the idea?
We want to get as many people as possible to make little presents for Breylon such as scribbles, doodles, photos, etc. of things he likes. We know we're short on time to reach the goal of christmas, but I'm sure many of you want to make Breylon smile when he can see all your works on his iPad on christmas day!What could we make?
Breylon loves Nick Jr. shows like Dora the Explorer and Thomas.
He likes Disney/Pixar movies such as Finding Nemo and Cars.
He loves his iPad where he plays Angry Birds and puzzle games, and he loves his q-tip.
Anything of U of M(University of Michigan) would fit great with Breylon.
He was named after a U of M football star: Breylon Edwards.
So start making art, draw, paint, doodle around, take photos or make pixel art. Whatever comes to your mind is welcome! Who should I contact with my works?
Please send a note to either mondscheinsonate
with a link to your gift as a deviation or downloadable image somewhere else.
We'd like to give the gifts to Breylon on 24th, so try to finish your work before that day. What else can I do?
Share this everywhere you can, so we reach more and more people to get loads of gifts for Breylon